I’m joining up with the other chronic illness bloggers at A Chronic Voice for February Prompts. It’s a monthly get together for anyone living with chronic illness. Sometimes I get bogged down with the business of blogging, and this is a great way to just freestyle it and listen to others with different points of view.
If you’d like to join us, there’s still time. Click here to submit your own entry and see what others are up to!
I’m coming up on the one year anniversary of my ulcerative colitis diagnosis. Adjusting is putting it mildly. It’s been more of a complete overhaul, to say the least. I’ve had to radically change my eating habits. As a special needs mom, I had some familiarity with grain free protocols such as the GAPS, Keto and SCD diets. I went through each of these and finally settled on the SCD Diet, which I’ve been doing for about six months. I try not to think about my favorites such as New York pizza, Jewish deli treats, Cuban bread, cafe con leche, chocolate…I should probably stop here.
Hope for me at the moment looks like being optimistic that the SCD Diet will keep me from bigger meds or big surgeries. Many people report results like this, but there’s no guarantee of course. I’m also hoping that we can figure out a good transition situation for my 19 yo daughter who has a severe learning disability but falls right through the cracks when we try to find supports and services.
The last ten years have been about surviving, beginning with the cervical dystonia diagnosis in 2010 quickly followed by my son’s cardiac emergency where he had to get a pacemaker almost 10 years after his open heart surgery. I’ve become a student of mind, body and spirit practices in order to keep my nervous system calm.
Last year we finished homeschooling. I devoted over 20 years of my life to it and I look back with mixed emotions on it all. In the beginning it was fun, kind of radical thing to do with my kids. But the last ten years I struggled with chronic illness, not being able to keep up with the homeschool Joneses and watching my younger daughter struggle to fit in. I’m kind of done and moving on to the next stage of life. I’m working towards finding a tribe where I can truly be my authentic self…possibly even in person and not just virtually? A girl can dream.
I’ve learned to expand my cooking skills (hello almond flour!) and am learning other ways to process my emotions rather than stuffing them with food, which I’d done for years. Yoga and meditation are teaching me to clear my head and stay in the present. I’m getting older and am starting to feel that if I want to make time to do certain things, the time is now.
Overall, I do feel reasonably positive about the future. Just have to remember to live it one day at a time!