Living with chronic illness is tough, debilitating and extremely isolating at times. But one of the perks of living in the 21st century is that people living with chronic illness are better connected and more informed than ever…because we have each other! Chronic illness blogs offer the opportunity to encourage and educate others who are on the some path.
Social community has become a real lifeline to me as I struggle to navigate the complexities of living with cervical dystonia and ulcerative colitis. I don’t even want to think about where I’d be without it!
People living with chronic illness often struggle with feeling like we’re stuck on the sidelines while everybody else is living a picture perfect life (on social media, anyway.) It gets discouraging. For us, blogging is a way to use our own unique life story and perspective to connect with others who are struggling. It also functions as a much needed creative outlet.
One thing that most people with chronic illness share, regardless of their diagnosis are mental health struggles. Anxiety and depression are very common. Unfortunately this is an area that is not addressed by most medical doctors and we’re left on our own to muddle through it. Checking in with other chronic illness bloggers is a great way to find some emotional connection with others who are struggling.
So brew some coffee, tea (or chicken stock!) curl up in a comfy place and give these blogs a look.
Chronic Illness Blogs
A Balanced Belly is a fantastic resource for anyone living with IBD (Crohn’s or Ulcerative Colitis) as well as other digestive conditions such as celiac disease.
Bladder-Help.com was created by Layla, a Nutritional Therapist who specializes in chronic bladder issues. If you struggle with UTIs or interstitial cystitis, you’ll definitely want to follow this blog!
A Chronic Voice offers encouragement to chronic illness suffers who are struggling with depression as well as caregivers and medical researchers and doctors.
Tea and Cake for the Soul – I’m all about blogs that offer encouragement and self care tips no matter what the diagnosis. This blog covers a wide range of subjects that will help you practically and mentally.
Brainless Blogger (I know the feeling!) shares about her experience living with migraines, fibromyalgia, asthma, hypothyroidism, depression and hypermobility syndrome. Like many of us, blogging and writing are very therapeutic for her.
Laura Chamberlain is a professional journalist who had to give up her career when she became chronically ill. She writes to share her experience living with a plethora of conditions including fibromyalgia, hypothyroidism, Raynaud’s syndrome and ME/CFS.
My Brain Lesion and Me writes about the complexities of living with a long standing brain stem lesion and spastic paraparesis. Her writing is beautiful and encouraging to anyone living with any type of chronic illness.
A Journey Through the Fog was diagnosed with fibromyalgia, osteoporosis, IBS, anxiety and panic attacks, depression, migraines and insomnia. She writes authentically about the mental health struggles that many of us face.
Blogs for Parenting With Chronic Illness
Living with chronic illness is challenging enough. But parenting with chronic illness? That’s a whole new level of parenting style. In fact, it stands alone in that regard! As a mom with chronic illness, parenting means constantly pacing my self, watching my stress levels, creating healthy meals for myself and my kids, advocating for my special needs kids, keeping track of their appointments and therapies finding time for exercise plus playing Uber driver.
Whew! I’m not even sure how I do it. But checking in with other chronic illness parents helps me to feel like I’m not alone. We encourage and learn from one another.
Chronic Mom lets people living with chronic illness know that they’re not alone in their struggles. Parenting with chronic illness presents its own unique set of struggles as we still have to be mom no matter how crappy we’re feeling.
The Spoonie Mummy also writes about parenting with chronic illnesses. Like me, she lives with IBD (Crohn’s disease) as well as juvenile rheumatoid arthritis, ostopenia, anxiety, iritis and high blood pressure.
Being Fibro Mom – everything you need to know about parenting with fibromyalgia, aka “Fibro parenting”.
Chronic Eileen writes: perspective of life changed drastically when I became chronically ill. Before Arthritis my schedule was filled with work, friends, underground heavy metal concerts and the music scene, drinking beer, to suddenly doctor appointments, treatment, isolation, medications and juggling single motherhood with my new very confusing disabilities both physically and mentally.”
Crazy Creole Mommy shares my IBD diagnosis. Brooke Abbot is now a dedicated advocate & WAHM (Work At Home Mom) who lives without a colon, and still battles her Inflammatory Bowel Disease & Arthritis daily. Armed with a mommy bag and a new lease on life, she shares her stories, tears, triumphs and quick tips with other mommies with autoimmune diseases.
IBD Moms – coming very soon but as an IBD Mom myself, I’m thrilled to find this support!
Lights Camera Crohns – Natalie (Sparacio) Hayden, 35, is a former TV news anchor living in St. Louis. Her mission in life is to be an advocate for those battling inflammatory bowel disease and to show that a chronic illness doesn’t have to dull your sparkle. Natalie was diagnosed with Crohn’s disease in July 2005.
Tripping Through Treacle – parent of two and lover of yoga, crochet, cocktails and interiors… oh, and also lives with Multiple Sclerosis (MS).
The Zebra Mom writes about motherhood with chronic illness (Ehlers Danlos Syndrome/EDS) and like me, parents children with special needs.
More Reads for Moms With Chronic Illness
Katie Carone writes: “It’s a hard to be a sick mom. For most mothers, a few days of illness may mean a back-up of laundry and a night or two of frozen pizza or cold cereal for dinner. For those of us moms that are chronically ill, it’s a whole other ball game.”
Bree Najera writes: “When a friend gets a bad cold, we know just what to do: We send them an encouraging text, order them some UberEATS, or rescue them from their kids for the afternoon. But when people come across a mom with a chronic illness — like me — they absolutely do not know what to do or say. And you know what? I don’t blame them.”
Allison writes: “Chronic illness affects tens of millions of Americans, many of whom are moms. I am one such mom. Perhaps you are too. It’s good to recognize we are not alone, that we are still good parents. That’s right! Our parenting strategies may differ from the norm, but we need to release ourselves from the guilt that tells us we aren’t successful. We can positively simplify with 3 essential skills and happily succeed as moms with chronic illness.”
This is a great article describing the hurdles of parents with chronic illness who live with conditions such as MS, scleroderma, diabetes, lupus and chronic fatigue. Also has some helpful tips about how to help a sick mom friend.
A bit fat Amen to that! Written by Rachel, a type 1 diabetic who shares self care tips to help her cope with the daily challenges of living with chronic illness.
I hope this list of chronic illness blogs gives you a starting point to finding your online cope. For me, knowing I’m not alone is half the battle.